Week 2 of #HSP1000 has been updated on the page. We’ve now completed 377 miles and have raised £2156. 19 people have travelled in 12 different ways. New methods this week are: mobility scooter, walking sticks, horse-riding and rowing. We are roughly following the A49, we have been through Shrewsbury and are now almost at Whitchurch. Some lovely stories have …
Now on Instagram
The group has a new Instagram page, so you can follow us there if you wish! https://www.instagram.com/ukhspgroup/
1000 Mile Challenge – Week 1
The first week of the 1000 mile challenge finished on Friday 16th July. We have got off to a really good start! Overall we have travelled 169 miles or 272 km. 10 members and the family of a former member have taken part, using seven different modes of transport. The distances The mode of transport with the greatest distance is …
1000 miles, Day 1
Day1: Members have got us off to a good start on our 1000 mile challenge – three were out on the first day! 7miles in manual wheelchairs and 31miles by bike. We’re almost at Newquay! #HSP1000 https://hspgroup.org/hsp-1000-mile-challenge/
2021 AGM on YouTube
Our AGM on Saturday 3rd July was a great success! – You can now watch this on our YouTube channel and catch up on the groups activities, see our awards and our #HSP1000 challenge! Thanks to everyone for taking part. https://www.youtube.com/watch?v=JGEET9D45rU #HSP #HereditarySpasticParaplegia #RareDisease
YouTube Channel Name
We have now passed 100 subscribers on our YouTube channel. This means we get to choose our own URL for the channel. https://www.youtube.com/c/UKHSPHereditarySpasticParaplegia The new name should make it easier for people to find us in searches, and remember who we are!
Voting for AGM
This is our first year with postal and electronic voting for our AGM. We’re starting to get some votes in, and this is a reminder for members to check their e-mails and vote! AGM is 3rd July. Votes must be cast by 26th June. #HSP #HereditarySpasticParaplegia #RareDisease