I was devastated to hear of the passing of my great friend John Mason at the end of last year.  Just in case any members aren’t aware of this sad news, I thought I’d put a few words on here. As many of you will know, John was a former treasurer of the HSP Group, a role that he held for several years. We were so lucky to have found such a thorough treasurer and with some great assistance from his wife Sonya, kept our accounts up to date with great precision.

Wishing all our members, supporters, friends, family and professionals happiness in this festive period! We encourage everyone to spend time however is best for them: with friends or family, or by themselves; at home or out and about; by resting or by being active. If you are having a tough time this year, there are different routes available for support: …

Today is International Day of Persons With Disabilities. We support people with Hereditary Spastic Paraplegia (HSP), a rare progressive neurological condition. At first, symptoms are small. As things progress, the lives of people with HSP change. Many will reach a point where they call themselves disabled. That acceptance point can be difficult in the context of negative societal views about …