It is another busy weekend for the group. The video from Henry Houlden’s talk on 17July is now on our YouTube channel https://www.youtube.com/watch?v=HtgQO-_vNBQ The next presentation is in an hour-or-so’s time – everyone is welcome. Also, the #HSP1000 challenge continues to run really well! – thank you to everyone!
1000 miles – week 2
Week 2 of #HSP1000 has been updated on the page. We’ve now completed 377 miles and have raised £2156. 19 people have travelled in 12 different ways. New methods this week are: mobility scooter, walking sticks, horse-riding and rowing. We are roughly following the A49, we have been through Shrewsbury and are now almost at Whitchurch. Some lovely stories have …
Now on Instagram
The group has a new Instagram page, so you can follow us there if you wish! https://www.instagram.com/ukhspgroup/
1000 Mile Challenge – Week 1
The first week of the 1000 mile challenge finished on Friday 16th July. We have got off to a really good start! Overall we have travelled 169 miles or 272 km. 10 members and the family of a former member have taken part, using seven different modes of transport. The distances The mode of transport with the greatest distance is …
1000 miles, Day 1
Day1: Members have got us off to a good start on our 1000 mile challenge – three were out on the first day! 7miles in manual wheelchairs and 31miles by bike. We’re almost at Newquay! #HSP1000 https://hspgroup.org/hsp-1000-mile-challenge/
2021 AGM on YouTube
Our AGM on Saturday 3rd July was a great success! – You can now watch this on our YouTube channel and catch up on the groups activities, see our awards and our #HSP1000 challenge! Thanks to everyone for taking part. https://www.youtube.com/watch?v=JGEET9D45rU #HSP #HereditarySpasticParaplegia #RareDisease
YouTube Channel Name
We have now passed 100 subscribers on our YouTube channel. This means we get to choose our own URL for the channel. https://www.youtube.com/c/UKHSPHereditarySpasticParaplegia The new name should make it easier for people to find us in searches, and remember who we are!