AGM Recordings
The recording of our 2025 AGM has now been uploaded to our YouTube channel. You can view this directly on this link: https://www.youtube.com/watch?v=Po9WgBxyOPc
We have also added a set of links to all our recorded AGMs on our AGM page, so if you wished to review the AGMs for any year since 2020, you can do so here: https://hspgroup.org/annual-general-meeting/
Presentation Recordings
At the AGM there were quite a few discussions about topics which we have recordings of presentations given after our previous digital AGMs. We have added a set of links to these recordings on our links page, so you can review these here: https://hspgroup.org/links/
To remind you of these presentations – they include both updates from research teams and other advice helping you live with HSP:
- Insights from large UK HSP cohort. Biomarkers, gait, Dr Channa Hewamadduma
- Rehabilitation and Physical Activity in HSP, Dr Gita Ramdharry
- HSP – A Eureka Moment, Lipid processing, Prof Andrew Crosy, Dr Emma Baple.
- HSP Genes in the UK and building a registry, Prof Henry Houlden
- Falling With HSP, a physiotherapist perspective, Coralie Seary
- Mindfulness, Acceptance and Values. Dr Ray Owen
- Overview of UK Benefits relevant to those with HSP. Citizens Advice Bureau.
- The molecular basis of HSP. Prof Andrew Crosy, Dr Emma Baple.
- Choosing Mobility Aids – Getting it right can be life changing. Ian Bennett
- A compassionate mind approach for living with HSP. Hannah Gilbert.
- Epidemiology of HSP in England & NI, Mental health outcomes, Harini Jeyakumar
- HSP Study on Diagnosis and Treatment, Estelle Marshall
As we get more presentations recorded, we will upload links on that page.