World HSP Day – October 17th

World HSP Day October 17th

On Friday October 17th, Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS) communities around the world are uniting to raise awareness about these rare diseases. This year, 17 associations and 3 foundations from 15 countries are participating in a global campaign.

Interlocked Finger Gesture
Our symbol for 2025 is the interlocked finger gesture:

👉 Join the tips of your left thumb and pointer finger.
👉 Join the tips your right thumb and pointer finger.
👉 Interlock them like a chain link.
Like this:

Then have someone take your picture. It could just be your hands making the gesture, or it can include your face:

With some Instagram (or similar) skills, you can then add this photo in our frame:

We’re looking to share these photos both on the 17th October and on the run-up towards it, principally on Instagram. If you can send your photos to us, we can put them on our Instagram channel, and perhaps other relevant places. Here is another example, but just showing hands.

Together, we will show the strength of our worldwide HSP and PLS community. Together, these become powerful symbols for the day. When you see them, please like and send to your followers

Here is the empty frame (hopefully with the transparent effect working):