Support group links
Facebook: HSP Support Group
This group is managed by the HSP Support Group in the UK and is for HSP Group members: https://www.facebook.com/hspgroup.org/
Facebook: Hereditary Spastic Paraplegia's Unite
A support group that is open to anyone in the world who are affected by HSP. To encourage, share information, offer advice, chat and support each other on good & bad days: https://www.facebook.com/groups/19469684343/
Rare Connect / HSP page
International Organisation providing forums for people affected by rare diseases: https://www.rareconnect.org/en/community/hereditary-spastic-paraplegia
Rare Diseases Europe
A European organisation aimed at providing help for various rarer diseases: https://www.eurordis.org/
American SP Foundation
The Spastic Paraplegia Foundation, Inc. (SPF) is a national, not-for-profit, voluntary organisation incorporated in February, 2002. It is the only organisation in the Americas dedicated to Primary Lateral Sclerosis (PLS) and Hereditary Spastic Paraplegia: https://sp-foundation.org/
HSP Research Foundation (Australia)
The HSP Research Foundation is an incorporated, registered Australian charity which funds research to find a cure. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing support and education: https://hspersunite.org.au/
HSP Europe website
European support groups and individuals working together to provide more information, advice and support regarding HSP: http://www.eurohsp.eu/
HSP Switzerland
Swiss self-help group for HSP: http://www.hsp-schweiz.ch
AEPEF (in Spanish)
Spanish HSP Group https://aepef.org/
Association Strümpell-Lorrain
The French support group: https://www.asl-hsp-france.org/
HSP - Selbsthilfegruppe Deutschland
The German HSP group: http://www.hsp-selbsthilfegruppe.de/
Tom Wahlig Stiftung
The German research foundation: https://www.hsp-info.de/