Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.
Last June I attended a meeting in Madrid where leaders of many HSP organisations around the world were in attendance. This meeting was organised by Frank McKeown who is the president of the Australian HSP Research Foundation. It was a very interesting three days and I made new friends meeting HSP’ers from USA, Spain, France, Switzerland, Italy, Denmark, Sardinia and the Netherlands.
Research was a major topic under discussion and particularly how all of our international groups can work together to help future research. During conversations, we all agreed that it would be a good idea to have a global identity for HSP support organisations and people with HSP everywhere. It will help with public recognition and demonstrate global unity in the quest to find effective treatments for the condition.
A working group of six was formed and we held two online competitions. One was to compile a tagline and one was to design a logo. There were hundreds of entries to both competitions and the tagline ‘Taking Steps Towards a Cure’ was unanimously selected as the winner. The working group whittled the logos down to our favourite six and then members of HSP organisations globally were invited to vote for their choice.
The winning design does not replace our existing logo but will be used alongside it. It will be shown on our website and future letterheads, newsletters and flyers. You may also notice that it is already displayed on the Australian website and I’m sure it’ll become a familiar sight. Thank you to all who voted. I personally think it was an excellent idea and I’m delighted with the result.
"I have had the honour and privilege to work for this wonderful school over the last 15 years. It is a Primary Special School in Birmingham for 135 children with moderate learning difficulties, but sadly I have to leave at the end of this academic year. I was diagnosed with HSP just over a year ago, but it has progressed rather rapidly, and it has been decided that I now need to retire. You can understand my emotions as you read on - these are my little stars - I will miss them all so much!"
Our Gift to you - From all the children at Dame Ellen Pinsent School
We have had a fun day in our school today! Our Head-Teacher, Mrs. A, told us that we didn't have to wear our school uniforms for one special day, but could choose anything we wanted to wear. To be able to do this, Mrs. A asked that we each brought a little bit of money into school, and when it was all collected in, we could send it to a special charity. We raised an amazing £165!!
Mrs. A then told us all about HSP, and how people can become very disabled with it, and that our Resource Technician has this condition. We wanted you to receive our special gift, which we hope will be able to help everyone in some way with this disability.
With love from us all xXx