On the run up to an announcement on the Wales Rare Disease Action Plan, journalist and HSP Support Group member, Phil Parry, discusses the issues faced by those with HSP in an article for The Eye.
Welsh Cross Party Group Pre Zoom
As some of you will not be able to attend the Welsh Cross Party Group at Senedd on Wed May 18th, Mike Cain is intending to have a zoom meeting on Tuesday 17th at 19.00, to hear any views you wish him to express. The HSP Group is represented and at present will raise the following point;- Wales is developing its …
Welsh Cross Party Group at Senedd
On Wednesday 18th of May, the Senedd Cross Party Group will be discussing its response to the UK strategy published in Jan 2021. It is important that HSP is the voice of Rare Diseases and a treatment strategy planned. Each of the Home nations is to produce its response to the England strategy published in 2021, so that it is …