People know that HSP is a rare disease. Rare Disease Day is celebrated on the last day in February each year, lauched by EURORDIS in 2008. The day aims to raise awareness of rare diseases, and offers a chance for the 300 million people (worldwide) with a rare disease to join together. There are a few HSP related things on …
Medway Neurological Network – Rare Disease Day
21st February 2025
The Medway Neurological Network organised a get together for Rare Disease Day, Friday 28th February, a week early on Friday 21st February.