26 November 2022
It was great to have 16 people meet up at the Packhorse Pub on Saturday 26th November for a pre-Christmas Lunch and was really lovely to welcome four new members plus partners/friends.
Birmingham Pre-Christmas Lunch
Scotland Zoom Meeting Report
22nd October 2022
The meeting went ahead despite the muddle of Meta Rejigging of Facebook, and several zoomed including some new. We spent a lot of time talking about rollators, bikes and other rural mobility aids that could cope with tough surfaces as well as what adjustments Motorbility might make.
Zoom for Families with Children & Young People Report
18th May 2022
A lovely group zoom with seven people and everyone happy to introduce themselves. One person had very recently developed hearing difficulties and decided to leave. He said that he’d be very happy to be included in the next meeting.
Colchester Branch Meeting Report
10th April 2022
We met at Feering Community Centre, near Colchester in Essex on Sunday, 10th April for our first face-to-face meeting since October 2019. It was so good to meet in person again.
Hitchin get together report
30th April 2022
The Hitchin Get together was held on the 30th April 2022 @ 13.30 @ the Orange Tree pub. It was the first face to face meet up since the pandemic began in 2020.
Milford meeting report – So good!
23rd April 2022
During the afternoon, I heard these words many times. Why? So good to see each other again. So good to be able to chat and share again. So good not to be the only one with a funny walk. This last comment was surprising, but confirms the benefits of meeting with others with the same disability.
Birmingham meeting report
9th April 2022
We would have loved to have had a face-to-face meeting here in Birmingham in April but the meetings are held  in a Day Centre Facility and Covid restrictions still haven’t allowed us to return there as yet. We are hopeful for October.
SPG 11 and SPG 15 Zoom Meeting Report
26th January 2022
We have a separate meeting for these types of HSP because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.
Milford Zoom Meeting Report
21st November 2021
Catching up with those who usually join us at Milford was a pleasure, plus welcoming a new couple.
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Family chat zoom meeting report
Thursday 18th November 2021
The meetings committee have been wanting to get parents & carers of children, young people & dependant adults with hsp together for a long time.