19th April 2026
We met at Feering, near Colchester in Essex on 19th April 2026 for our Spring meeting.
Colchester Branch Meeting Report
Birmingham meeting report
18th April 2026
A group of around 30 got together at the Kenrick Centre in Birmingham to chat, share and build relationships over lunch. There were new faces and old and everyone all came together and united around our shared experiences of life with HSP.
Milford Afternoon Tea report
11 April 2026
Such an afternoon! The day started dull, with the afternoon bringing sunshine and brightness, which very much reflected the Milford meeting. Sadly, circumstance such as ill-health, no dog sitter and enjoying holidays prevented people joining us.
SPG 11 and SPG 15 Families Zoom Meeting Report
14 January 2026
We have a separate meeting occasionally for these types of HSP because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.
Milford Afternoon Tea meeting report
2nd November 2025
Holding meetings in the Autumn comes with the added difficulty of early dark evenings and changeable weather.
Report from HSP Meeting Scotland
25 October 2025
The first Scottish face to face meeting was held in Williamwood High School on the south side of Glasgow on Saturday 25 October.
Hitchin report
25 October 2025
7 of us meet at the Orange Tree pub just outside Hitchin. A few more hoped to come but were prevented from attending at the last minute while several others had prior commitments but hope to be able to come in future.
Birmingham October Meeting Report
18 October 2025
The Birmingham meeting was held on Saturday 18th October. It was arranged to be just a chatty get-together but we had a call from Doctor Jacob Day – who is a neurology doctor currently half way through a PHD at Exeter university, researching HSP with Andrew Crosby and his team.
Feering, Colchester Meeting Report
12 October 2025
We met at Feering Community Centre in Essex for our Autumn gathering on 12th October this year. We were joined by three new people and chatted over tea, coffee and biscuits.
Medway Neuro-Tech 25
4th September 2025
To celebrate ten years of the Medway Neurological Network, the group organised the Medway Neuro-Tech 25 at the Universities at Medway, Chatham.