26 November 2022
It was great to have 16 people meet up at the Packhorse Pub on Saturday 26th November for a pre-Christmas Lunch and was really lovely to welcome four new members plus partners/friends.
22nd October 2022
The meeting went ahead despite the muddle of Meta Rejigging of Facebook, and several zoomed including some new. We spent a lot of time talking about rollators, bikes and other rural mobility aids that could cope with tough surfaces as well as what adjustments Motorbility might make.
18th May 2022
A lovely group zoom with seven people and everyone happy to introduce themselves. One person had very recently developed hearing difficulties and decided to leave. He said that he’d be very happy to be included in the next meeting.
23rd April 2022
During the afternoon, I heard these words many times. Why? So good to see each other again. So good to be able to chat and share again. So good not to be the only one with a funny walk. This last comment was surprising, but confirms the benefits of meeting with others with the same disability.
9th April 2022
We would have loved to have had a face-to-face meeting here in Birmingham in April but the meetings are held in a Day Centre Facility and Covid restrictions still haven’t allowed us to return there as yet. We are hopeful for October.
26th January 2022
We have a separate meeting for these types of HSP because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.