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Our newsletter, now named "NewsLink" has been published continuously since 1997. All available issues are published here. Browse through them using the links at the bottom of the page, or use the "search..." box above to find items of interest.


 

May 2018 - Dorset Adventurer to challenge five gruelling 5km peaks in eight days for HSP

Wimborne man Will Watson will be tackling the route to Everest Base Camp in September 2018. All funds raised will be donated directly to the H.S.P. Support Group, a registered charity who work very closely with people who suffer from hereditary spastic paraplegia (disability to the lower limbs).

“I didn’t want people to pay for something on my bucket list, instead any donations will go directly to such a deserving cause. The route will take me over some of the most arduous and hostile terrain on Earth, I'm so excited at conquering it.”

The journey through the mountains to Everest Base Camp takes in some of the highlights of the Himalayan mountain range. The expedition begins at the World-renowned Lukla airport, classed as one of the most dangerous on the planet. Moving onward through Namche Bazaar, Will will take advantage of the last main town before heading into the mountains. He will pass the World famous Tengboche Buddhist monastery, at a height of almost four kilometres, and summits such as Kala Pattar, Gokyo peak and Chukkung Ri, reaching a maximum height of over five and a half kilometres.

Will has already successfully ascended Mt Kilimanjaro, hiked the Himalayan and Dolomite mountain ranges, competed in charity boxing matches for Wimborne ABC/Hit Fitness and has been studying and training for the past two years in preparation for joining the Royal Navy. Will is also a high ropes instructor at Go Ape, Moors Valley Country Park, and participates as a youth coach with his local rugby team Wimborne RFC.

Donations can be made by visiting www.justgiving.com/fundraising/everestforhsp For more information, or if you are a business who would like to get involved in this exciting expedition, please contact Will Watson This email address is being protected from spambots. You need JavaScript enabled to view it. or Jeff Webb This email address is being protected from spambots. You need JavaScript enabled to view it..

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February 2018 - Lily Rice – Flipping Awesome!!

Lily RiceHi, I’m Lily Rice, I've just turned 14 years old, I live in Pembrokeshire and I have HSP, but more importantly I am the only girl riding WCMX (wheel chair motor cross) in the UK. WCMX is a mix of BMX and Skateboarding and is practiced at skateparks. It is a relatively new sport, especially in the UK. In the last few years my condition has progressed whereby I now rely on a wheelchair. I’ve never let my condition hold me back or stop me from trying to achieve my goals.

I had the privilege of meeting the current world champion Aaron “Wheelz” Fotheringham at Nitro Circus in 2016. We stayed in touch and he donated his old wheelchair to me in February 2017. Since then I’ve been unstoppable.

My journey through 2017 has been incredible. It started in June with a demonstration in front of hundreds at my local skate park and I had an amazing response from the crowd. In July I performed another demonstration at the National Action Sports Show, this time in front of thousands, to raise the profile of WCMX. I had amazing feedback from the organisers, competitors and spectators alike. I dropped a 10ft vertical ramp for the first time which was epic!

In early September Unilad contacted me to film a mini documentary on WCMX after seeing my video edits on my social media. I became the first person in the UK, first female in Europe and second female in the World to successfully land a back flip on a wheelchair. To date it’s had over 2 million views online. The video of this went viral / worldwide and was featured on various BBC channels, ESPN American, Lightworkers and Buzzfeed.

I entered a memorial competition in Cardiff and came 3rd in the under 16’s against able bodied people. As a result of my back flip I've worked with a number of TV production companies, played the part of a WCMXer in a children’s TV drama and featured on Newsround. In November I filmed a music video with Tom Fletcher (McFly) for Christmas. The song and video had a powerful message about someone with a disability striving to achieve their goals.

In November I also received the Radio Pembrokeshire Young Inspirational Person award in recognition of what I have achieved. Before Christmas I was invited to participate at a high level free sports demonstration for Toyota in Copenhagen. The International Olympic and Paralympic Committee were present as part of a project with the aims of including WCMX into the games.

I’m currently involved in working with schools and disability groups in England and Wales to talk about WCMX and encouraging others to have a positive outlook. In April I will be the first person ever to represent Great Britain at the World Championships in California and I hope to compete in the Paralympics one day. I would like to travel the world demonstrating WCMX and inspiring others to show that having a disability, or using a wheelchair doesn’t have to be life limiting. You can do anything that you put your mind to, you just have to adapt and do it differently.

You can follow my journey on my social media; Facebook and Twitter Lily Rice WCMX and Instagram @hsp.me. Lily Rice

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