The HSP Support Group helps people diagnosed with Hereditary Spastic Paraplegia [also known as Familial Spastic Paraparesis]. It is a UK based Registered Charity and was started as a 'self-help' group in 1989 by Stephanie Wyatt to support her affected husband and son.
We now have over 300 members in the UK. Click here to see map We are trying to reach more people with the condition, this remains a problem due to the rarity of diagnoses.
What is HSP?
Hereditary Spastic Paraplegia is a diagnosis which covers a range of rare genetic disorders. People of all age groups can be affected. The main symptoms are stiffness (spasticity) and/or paralysis in the lower limbs. HSP causes degeneration of the upper motor neurons within the brain and spinal cord. Filaments (called axons) within the neurons relay messages to the limbs. The longest of these connect with the lower limbs and are affected more than those to the upper body. So most people with HSP do not notice symptoms in the hands or arms. For those with uncomplicated HSP, the condition has little or no effect on life expectancy. Read More...